The tricky path to employment Is trickier when you’re autistic
Leigh epitomizes the underemployed. The 39-year-old has a master’s degree in library science from a top-ranked school, years of experience working the circulation desk in a Boston library, and an IQ of 145. He is reliable and considerate, and he works hard.
Yet for the past eight years, since he lost his salaried Boston library job due to austerity measures, the only permanent job Leigh has landed is at the T.J. Maxx near his mother’s home on Cape Cod. He works part time dusting, vacuuming, and washing the mirrors, and he is paid the minimum wage, $11 an hour. Over the past few years, Leigh has applied for dozens of library positions. Every one has turned him down, most without an interview.
What’s held him back? The library business is contracting, not expanding, and full-time employment is hard to come by, of course. But Leigh, who asked that his last name not be used to protect his family’s privacy, faces an additional hurdle: He has a mild form of autism, a condition that used to be labeled “pervasive developmental disorder not otherwise specified” and is distinct from both autism and Asperger’s.
Autistic adults may very well be the most disadvantaged disability group in the American workplace. Only 14 percent of adults with autism held paid jobs in their communities, according to one May report from Drexel University’s Autism Institute (the report looked just at those who had received state developmental disabilities services). Yet a pathetic 2 percent of all autism research funding goes to understanding adulthood and aging, according to a 2017 report from the Interagency Autism Coordinating Committee, based on 2015 numbers. While most research is focused on figuring out how to prevent or treat autism disorders when they are first diagnosed at young ages, we also have to remember that this work has not yet materialized as a solution for the more than 3.5 million Americans living with autism. “It’s only in the last 10 to 15 years that there’s been growing recognition of the fact that children grow up to be adults,” says Susan Daniels, executive secretary of the Interagency Autism Coordinating Committee. As Leigh’s story demonstrates, autistic adults have their own needs—needs that we as a society are just figuring out how to fill.
the full article at Slate
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